We were able to come home on Wednesday afternoon, from Gainseville. We were there for two and a half weeks this time. We had to wait for Boaz's blood counts to drop, which took a while, then rise. Then they did a stem cell apheresis, they take a certain amount of stem cells and freeze them to give back to him later. This will protect those cells from the harder chemo. He did a lot better this time. He played throughout the chemo, and while I am very thankful, we are learning new ways to keep him content, while his IV line is shorter and he shouldn't leave the room. Every time he heard the helicopter (for the life flight) fly overhead, he'd run to the window trying to see the helicopter. He thought we were supposed to know when that was coming so we could make sure the IV line didn't catch on anything! He did get pretty fussy when his counts dropped, and on those days when we sat in the clinic for 4 -7 hours a day. Its a good thing I taught him to sit through church young, the training is paying off. We were only in the hospital four days this time. The remainder of the time Paige, Boaz, and I stayed at the Ronald McDonald House. It was a nice break from the hospital! They wouldn't let us come home though, just in case he got a fever and needed care quickly. He got no fevers this time, and needed no extra care. We should be able to do our next few rounds of chemo in Pensacola, at Sacred Heart Children's Hospital. We will be much closer to home, and my other boys!! We met two nice, Christian families while at the RMH. When we got home, Boaz clapped, squealed, and hugged all his brothers! It was really cute. He was REALLY happy to be home and cried when we had to come inside. Then he remembered he could play inside too! We are very thankful for all of our friends, even if we don't know you, and your prayers for Silas.
We've been taking Silas out for a little change in scenery. He's getting sick of our room at the Ronald McDonald House. He and Sister had a good time on the play area today. We thank God for how good he feels this time.
We seem to have a different little boy this time! Its no lie. He is actually hooked up to the chemo in the top two pictures. He finished his second round on Friday, the 5th of June. We have learned a few ways to deal with the side effects differently, and so far, he hasn't really had any. He gets a little moody sometimes if I don't realize he's hurting, but that's normal. He had a good time at home too. Here he's washing dishes with Sister. We had all of the normal side effects last time; mouth sores, hair loss, we were told to expect toe and finger tingling, but what we got was a little boy who couldn't stand. I like being told the truth, but sometimes they like to water it down a little. I like to investigate everything, ask lots of questions, and question lots of things. The doctors really don't seem to get aggravated with me. They do have to stop and think sometimes, before they answer me. Sometimes they even change what they're doing. If you don't know something, ask someone who does. If you don't like or believe their answer, study it out until you know what is going on! That's how I am naturally. If you are not, get that way for the sake of your children and yourself. It's our job. Being in the hospital has really opened our eyes to the sad state of moms and dads. I've seen them do lots of things, maybe one day I'll humor you with some stories, but I haven't seen many of them being moms and dads! Back to little Silas Boaz! We have really enjoyed seeing the surprised look on the faces of the doctors & nurses. The medical staff in the Children's Hospital of UF have been good. We had a good pediatrician this time, Dr. Kenny. Truthfully, I don't even remember the ones from last hospital stay. All of the doctors and nurses that come in our room, or see Silas running down the hall, remark on how well he looks. As God gives us wisdom, I will continue to use it. My God Is Still On The Throne!!!
On May 23rd we held our graduation ceremonies. That just happened to be the day after we got home from Gainesville. Our Hunter got to walk the isle for his K-5 graduation (we know he's only 4 - we home school, remember!!). I was very excited to be there for it, it was important to him. He actually looks a little nervous doesn't he? Hunter, for those of you that know him, is a very fun, loving, bundle of energy He has a personality all his own. My children are all very different. Sometimes I see something that is the same in two of them, but normally not. It was always a mystery to me how children all raised in the same house could be so different. But, now I see, that they are different from the start. God makes them look different. God also makes them perceive things differently. That makes them BE different people. Of course, now it sounds simple! H-happy U-under & over everything N-never forgets my hugs at night T-tumbles with his brothers E-energetic R-really makes me smile :) Having children is great!!
Boaz loved for us to color with him. And we would every time, just to see his face light up. When we colored he loved to scribble on it, just to tease us. Then he would look at us with that michievous look and smile his gorgeous smile.
Sometimes children say the funniest things. Other times it's soooo typical that you aren't sure weather to laugh, or cry!!!
Stonewall: "I'm gonna go to Walmart and buy an airhorn, then I'm gonna use it to wake up Sister at 6:30!" Then he laughs hysterically!!!
Timothy (7): When I grow up my house is gonna be shaped like an alligator. You'll have to go in the mouth to get in, then slide down and people will scream!"