last July 21st

Last year at this time

I was in the hospital with Boaz.

(that's no surprise).

His 1st port had come loose

and they were replacing it. 

We had been fighting to get a feeding tube also. 

We got it since he was already in surgery. 

He had gone through three cycles of chemo

and the cancer had grown.

We were ready to get him off of it.

You can read the story of how it all 

went if you scroll through and look 

at posts from this time last year.

He was sleeping so soundly, 

they made me wake him to give him the

medicine that would make him sleep???

So he wouldn't cry when they took him.

No wonder he cried!!

The way it all happened was a miracle. 

God took care of every detail so that

he could get the new port, the feeding tube, 

and get away from the chemo.

This is pretty much right out of surgery.

Maybe a few hours later.

He was such an incredibly happy boy.

He just had a way about him. 

While we were talking to the nurse about 

the feeding tube, the nurses gave Boaz

a whole roll of orange ace bandage and 

he had Aaron wrap his turtle, COMPLETELY. 

But look at that smile!!!

Driving off from the hospital that day

was like growing wings.

I know the decision is different for everyone,

but I knew I couldn't continue to keep him

on the chemo, watching the tumors grow, 

making him sick, and damaging his 

precious little body.

Just a few days later you'd have 

never known he had surgery.

He usually had this beautiful smile 

on his face. 

That smile was worth lots of sleepless nights.

Stonewall and Boaz were constant companions.

This is within the week and he was

running around the park playing.

 

God Is Still On The Throne!!!

We seem to have a different little boy this time! Its no lie. He is actually hooked up to the chemo in the top two pictures. He finished his second round on Friday, the 5th of June. We have learned a few ways to deal with the side effects differently, and so far, he hasn't really had any. He gets a little moody sometimes if I don't realize he's hurting, but that's normal. He had a good time at home too. Here he's washing dishes with Sister. We had all of the normal side effects last time; mouth sores, hair loss, we were told to expect toe and finger tingling, but what we got was a little boy who couldn't stand. I like being told the truth, but sometimes they like to water it down a little. I like to investigate everything, ask lots of questions, and question lots of things. The doctors really don't seem to get aggravated with me. They do have to stop and think sometimes, before they answer me. Sometimes they even change what they're doing. If you don't know something, ask someone who does. If you don't like or believe their answer, study it out until you know what is going on! That's how I am naturally. If you are not, get that way for the sake of your children and yourself. It's our job. Being in the hospital has really opened our eyes to the sad state of moms and dads. I've seen them do lots of things, maybe one day I'll humor you with some stories, but I haven't seen many of them being moms and dads!
Back to little Silas Boaz! We have really enjoyed seeing the surprised look on the faces of the doctors & nurses. The medical staff in the Children's Hospital of UF have been good. We had a good pediatrician this time, Dr. Kenny. Truthfully, I don't even remember the ones from last hospital stay. All of the doctors and nurses that come in our room, or see Silas running down the hall, remark on how well he looks. As God gives us wisdom, I will continue to use it. My God Is Still On The Throne!!!